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"Each of us must come to care about everyone else's children. We must recognize that the well being of our own children is intimately linked to the well being of all other people's children. After all, when one of our children needs life-saving surgery, someone else's child will perform it. When one of our children is harmed by violence, someone else's child will commit it. The good life for our own children can be secured only if it is also secured for all other people's children. But to work for the well being of all children is not just a practical matter-- it is also right!" - Lilian G. Katz, Phd.

Monday, March 28, 2005

A Quick Update

Well, it is 11 pm and finally quiet time. All my mail is read, I have my cross stitch out, and ice on my knee.

It has been a rather emotional day for me. I spent 5 hours at the Social Security office today doing Konal's disability re-determination. It has to be done every 3 years and I understand that, but I hate having to face his issues head on. I am very strength based, and tend to focus on what he does well. Instead, today I had to focus on every gory detail. Sigh. If I didn't need that money to survive so badly, I would have told them exactly what I think of the process and walked out. Konal can't get what he needs on private insurance, and all AZ programs are income based, so that is not an option.

Thank goodness I have three binders of his records. I used every one of them today.

To top it all off, when I got home from school, the supervisor, who was covering a shift and who I think is rather awesome, let me know that with my permission, he was referring Aidan for services. I was a
bit in shock- apparently AIDAN had to be restrained tonight and who had a huge incident. My baby- the quiet one..... sigh.

It is out of the blue and rather disturbing, but not uncommon in the sibling of a special needs child. Konal is doing really well right now, and as the supervisor put it "nature abhors a vacuum". Aidan has been exposed to this behavior a long time.

Even so, I am going to investigate it medically, since it is rather sudden. He has been having behavior issues since Nov, but they were all in the reasonable range with the circumstances of our household. He also has had sudden headaches that reduce him to tears. In the car today, waking him up in the middle of the night... those have been increasing too and they started fairly recently. I am taking his little butt to the dr ASAP to make sure this isn't organic in nature, instead of behavioral. I am a bit scared, and really hope it is behavioral.

I don't know if I mentioned that Aidan failed a hearing test at his well child. Well, we had the ENT follow up appt, and in all participatory tests, he registered a profound hearing loss. In the non-particpatory tests, his hearing tests normal. They have one more round of tests they are doing because of his history of hydrocephalous. Then, if he turns out to be hearing, we have more tests, because apparently his brain is not processing what he hears correctly.

When it rains, it pours.

To top it off, I am behind in Govt class, and I really just plain have no motivation to catch up right now. I am going to start tomorrow, but my heart just isn't in it, and I am not sure how to get that back. I enjoy the material, so there is no excuse.

Good news: I am very much in a size 12 now, Konal is doing great, Pinewood Derby is coming and the boys have their cars done, and life goes on :)